Sotos Syndrome Support Association Online community for education of professionals and families and to exchange ideas, gather research, and help one another cope. Quarterly newsletters, reference library, annual meetings, and conferences are available to members and professionals. http://www.well.com/user/sssa/

Soto's Syndrome Also known as cerebral gigantism, an information sheet compiled by NINDS. http://www.ninds.nih.gov/health_and_medical/disorders/sotos.htm

MCW Healthlink An article about soto's syndrome with an explanation of what it is, the features, symptoms and the prognosis. http://healthlink.mcw.edu/article/921961934.html

About com Guide Laura L. Jelliffe, Ph.D. Symptoms, diagnosis, and treatment of Soto's syndrome. Information on research, community outreach and support. http://genetics.about.com/science/genetics/library/blsoto.htm

Sotos Syndrome Support Association of Canada Provides educational and emotional support, and current information. English and French. http://www.sssac.com

Spastic Paraplegia Foundation Supports on the upper motor neuron disorders hereditary spastic paraplegia and primary lateral sclerosis. Information about these conditions, disability resources, newsletters, news, announcements, research and support. http://sp-foundation.org/