NINDS: Aicardi Syndrome Information sheet compiled by National Institute of Neurological Disorders and Stroke with general information, and a list of organisations. http://www.ninds.nih.gov/health_and_medical/disorders/aicardi.htm

Corpal A support group for the families and carers of those affected by this condition. Includes information and reports, letters, and resources. http://freespace.virgin.net/jan.webster/index.htm

Contact a Family: Aicardi Syndrome General information, including associated conditions, plus inheritance patterns. http://www.cafamily.org.uk/Direct/a28.html

National Library of Medicine: Aicardi syndrome provides a summary, list of synonyms, and the major features. http://www.nlm.nih.gov/mesh/jablonski/syndromes/syndrome015.html

NINDS: Agenesis of the Corpus Callosum Information sheet by the National Institute of Neurological Disorders and Stroke, including symptoms, treatment and prognosis. http://www.ninds.nih.gov/health_and_medical/disorders/agenesis_doc.htm

Medline Plus: Aicardi Syndrome Definition, symptoms, signs and treatments. Includes support group information plus an illustration. http://www.nlm.nih.gov/medlineplus/ency/article/001664.htm

Aicardi Syndrome Foundation Information about the disease, a medical survey, where to get help, publications and a chat room for support. http://www.aicardisyndrome.org/

Megan A positive personal account. http://www.geocities.com/nygblue11/2nd.html

Cystinosis Foundation Includes brochures, FAQs, medical exchange, research, and a message forum as well as details about the organization and its events, conferences and fund raising. http://www.cystinosisfoundation.org