The Fragile WEB Site Includes a reference database, family support groups and clinical information. http://web.ukonline.co.uk/c.jones/contents.htm

Institute of Child Health: Jacobsen Syndrome Clinical synopsis, plus research summaries. http://www.ich.ucl.ac.uk/units/mhu/fws/frames/jsoframe.htm

The Complete Barth Syndrome Homepage List of clinical symptoms, history of the condition, current news, and links to support groups. http://www.csun.edu/~hcbio033/barth.html