International Society for Mannosidosis & Related Diseases Information about the organization, its mission and services. Provides support, education and research on Alpha Mannosidosis and other similar disorders. http://www.mannosidosis.org

NORD: Mannosidosis Offers alternative names, a general discussion and resources. http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Mannosidosis

Sotos Syndrome Support Association of Canada Provides educational and emotional support, and current information. English and French. http://www.sssac.com