The CaF Directory Information about the ectodermal dysplasia disorders, the inheritance patterns and pre-natal diagnosing. http://www.cafamily.org.uk/Direct/e14.html

The Andy Fund Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene. http://www.andy.org.mx

National Foundation for Ectodermal Dysplasia ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services. http://www.nfed.org/

The Ectodermal Dysplasia Mailing List Includes instructions on joining the list, FAQs and links to further resources. http://hometown.aol.com/charliein/ed/home.html

Ectodermal Dysplasia Society Information about the organization as well as the ED condition. Includes links, news articles and contact details. http://www.ectodermaldysplasia.org/

NORD: Ectodermal Dysplasias Offers synonyms, a general discussion and resources. http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ectodermal%20Dysplasias

NORD: Waardenburg Syndrome A general discussion about this disorder, followed by further resources. http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Waardenburg%20Syndrome