Proteus Syndrome Foundation Support and education for families and professionals. Includes abstracts, brochures, glossary, links and newsletters. http://www.proteus-syndrome.org/

The CaF Directory A definition of Proteus syndrome, its inheritance pattern, pre-natal diagnosis and a support group. http://www.cafamily.org.uk/Direct/p50.html

NORD: Proteus Syndrome Offers synonyms, a general discussion and further resources. http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Proteus%20Syndrome

NORD: Shwachman Syndrome Offers a general discussion, the synonyms and further resources. http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Shwachman%20Syndrome