Online Genetic Syndrome Support Groups Sites are listed alphabetically by disease/condition. http://members.aol.com/dnacutter/sgroup.htm

Alliance of Genetic Support Groups National coalition of consumers, professionals, and genetic support groups to voice the common concerns of children, adults, and families living with, and at risk for, genetic conditions. http://www.geneticalliance.org/

Peter's Anomaly Support Group An online support group for people dealing with Peter's Anomaly. http://www.freeyellow.com/members8/rob66/index.html

Chromosome Deletion Outreach, Inc. (CDO) Non-profit voluntary support group for families affected by rare chromosome disorders. http://www.chromodisorder.org/

Blue Cone Monochromacy A discussion board for those affected by BCM. Read the contents, search and post from this location. http://www.yandle.com/bcm

Chromosome 22 Central Support group for families who have children with any chromosome 22 disorder, including trisomies, cat eye syndrome, translocations, deletions 22q11, 22q13, VCFS, Digeorge syndrome, rings and unique malformations. http://www.nt.net/~a815/chr22.htm

S.O.F.T. A United Kingdom support organisation for parents of infants with Trisomy 13 and 18 and other related disorders. http://www.soft.org.uk

Unique Rare Chromosome Disorder Support Group Support and information for families of children with rare disorders. http://www.rarechromo.org/

S.O.F.T. Support Organization in the United States for Trisomy 18, 13, and other related disorders. Provides literature, conferences, newsletter, chapter information, and international contacts. http://www.trisomy.org/

Cornelia de Lange Syndrome (CdLS) Foundation Outreach Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime. http://www.cdlsusa.org

Chromosome 18 Issues A support and awareness discussion board for people affected by this disorder. http://pub6.ezboard.com/bchromosome18issues

Ideas A support group for families and professionals interested in the chromosomal condition known as isodicentric 15 (formerly inverted duplication 15). http://IDIC15.ORG

Parents of Polydactyly and Webbed Children A support board for those parents of children born with extra toes/fingers as well as webbing. A place to learn new information and make friends with others http://pub55.ezboard.com/bparentsofpolydactylychildren

Yahoo Groups Floating Harbor An active support site for the parents and families of children with Floating Harbor Syndrome. http://groups.yahoo.com/group/floating_harbor/

The Rainbow A forum for people who have chromosome abnormalites to show support, give advice and comfort. http://pub10.ezboard.com/btherainbow

Chromosome Help-Station Information on rare chromosomal disorders. Support and advice for families. http://www.chromosomehelpstation.com/

8th International Symposium on Mucopolysaccharide and Related Diseases The 8th International Symposium on MPS and Related Diseases will be held in Mainz, Germany. Traditionally, this symposium unites scientists, patients and their parents to share and discuss recent scientific results. http://www.mps-kongress2004.de

Lafora body disease research talk This is a discussion group about lafora body disease. http://groups.msn.com/laforabodydiseaseresearchtalk

Distal Trisomy 10q Families Support for families of children with Distal Trisomy 10q. Family stories, contacts, other information. http://trisomy10q.darylanderson.com

Who is EPI ? The mission of the European Porphyria Initiative (EPI) is to present an up to date approach to the understanding of porphyria. http://www.porphyria-europe.com