The Romberg's Connection International support group for families whose lives are affected by Romberg's syndrome. http://www.geocities.com/HotSprings/1018/

Romberg's Syndrome General information, contacts, on-line discussion groups and links. http://www.familyvillage.wisc.edu/lib_rombs.html

Parry Romberg Syndrome Stories from people affected by Parry Romberg syndrome, support and information. http://www.cannylink.com/diseaseparryromberg.htm

Parry Romberg Syndrome Information Page Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. http://www.ninds.nih.gov/health_and_medical/disorders/parry_romberg.htm

Parents of Children with Craniosynostosis (PCC) Offers information and support about craniosynostosis. For families in Eastern Idaho and parts of Utah. http://pcc2000.org.tripod.com/