Stickler Involved People Medical information, networking, news and updates. http://www.sticklers.org/

Dave Hawley's Stickler Syndrome Page Indexes on-line information related to Stickler's Syndrome. http://hometown.aol.com/dhawley/stickler.html

Stickler Syndrome Support Group Information and support for people affected by Stickler Syndrome. UK-based, but with international links. http://www.stickler.org.uk

Stickler Syndrome Outreach - Oregon Reaching out to those in Oregon who are affected by Stickler's Syndrome. http://oregonsticklers.homestead.com

Parry Romberg Syndrome Information Page Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations. http://www.ninds.nih.gov/health_and_medical/disorders/parry_romberg.htm