Von Hippel-Lindau Family Alliance Information about the organization and the disease. Includes FAQs, newsletter, handbook, meeting schedules and support group data. http://www.vhl.org/

Radiology: Von Hippel Lindau Disease Genetic, clinical and imaging features from the NIH. http://www.cc.nih.gov/ccc/papers/vonhip/toc.html

Family Village Links to chat rooms, web sites and information about Von Hippel Lindau's disease. http://www.familyvillage.wisc.edu/lib_vonh.htm

Ocular Manifestations of Von Hippel-Lindau Disease An article by Emily Chew, M.D., National Eye Institute. http://www.vhl.org/meetings/97c3chew.htm

Von Hippel-Lindau Disease Information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/health_and_medical/disorders/vonhippe_doc.htm

Readers Digest Health A general discussion about floating harbor syndrome and some resources for further information. http://www.rd.com/common/nav/index.jhtml?articleId=8612919