Ben's Dream Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter. http://www.bensdream.org

MPS III: Sanfilippo Syndrome Information, including the causes, different forms, the inheritance and how the disorder progresses. http://www.mpssociety.org/mps3.html

Children's Medical Research Foundation A non-profit foundation formed to raise and grant funds for research to find a cure for Sanfilippo Syndrome. http://www.curekirby.org

Bennett Children's Foundation Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support. http://www.helpachild.net

NORD: Sanfilippo Syndrome Offers a list of synonyms, a general discussion and further resources. http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Sanfilippo%20Syndrome

American Society of Genetic Disorders Informs health professionals, legislators, health policy makers, and the general public about all aspects of human genetics. http://www.ashg.org/genetics/ashg/ashgmenu.htm