Cherubs A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia. http://www.cherubs-cdh.org

National Organization for Rare Disorders, Inc. Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases are listed alphabetically for easy searching. http://www.rarediseases.org/

Office of Rare Diseases Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups. http://rarediseases.info.nih.gov/ord/

International Rare Disease Support Network A community providing more than a 1000 different links to support groups for the people of all nations. http://www.raredisorders.com

Human Growth Foundation Information about growth-related disorders through education, research, and advocacy. Member driven organization. http://www.hgfound.org/

Contact a Family Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK. http://www.cafamily.org.uk

Nomid /Cinca Resource for parents and patients suffering from Neonatal Onset Multi-inflammatory Disease Chronic, or Infantile, Neurologic, Cutaneous and Articular syndrome. Site maintained by patients, parents and friends for their counterparts worldwide. Email support group at eGroups. http://pweb.netcom.com/~jkbarton/nomid/Html/nomid_home_page.htm

Tetrahydrobiopterin Information on structure, biosynthesis and pathophysiology of BH4 and tetrahydrobiopterin deficiency. http://www.bh4.org

Fibrous Dysplasia Support Online For those seeking support and information concerning the rare bone diseases: fibrous dysplasia, McCune Albright Syndrome and Cherubism. http://members.cox.net/fdsupport/index.html

Kindler Syndrome An article and case study of this rare disease. Includes links. http://digilander.libero.it/camdic/KINDLER.html

Lymphangiomatosis and Gorham's Vanishing Bone Disease Provides general information and a personal account, including pictures and X-rays. Also offers patient contact and an email discussion group. http://www.gorhams.dk

Fibrosing Mediastinitis The least common, but most severe, late complication of histoplasmosis. Educational and research information. Includes interviews, patient stories, and a community forum. http://www.fibrosingmediastinitis.com

Depression and Sleep Disorders Information about sleep cycles and circadian rhythms; links to other sleep sites. http://www.depressiondepot.net/Facts/Types/sleep.html